Clara lost her battle with biliary atresia last night. Matt and Ana ask that you respect their space and time to grieve as a family at this time. We will post details as they become available. You can post messages to the family in the comment section of this blog or in the discussion part of the Clara Bear Fund page on facebook.
At this time, if you wish to do something for the family, please donate to the Clara Bear Fund.
Thank you,
The Clara Bear Admin Team
Sunday, November 7, 2010
Tuesday, October 26, 2010
Support Clara while shopping!
The great vendors of etsy are helping Clara a bit more! The following vendors are hosting an online benefit through November 1st. Shop at their sites and a portion of the proceeds will be donated to the Clara Bear Fund! Keep checking back as more vendors join the cause.
http://paulyspalette.etsy.com/ (art work)
http://carersattic.etsy.com/ (hand made crafts)
http://craftsbycarer.etsy.com/
http://princessgracebow.etsy.com/ (hair bows and more)
http://bignoggincreations.blogspot.com
http://paulyspalette.etsy.com/ (art work)
http://carersattic.etsy.com/ (hand made crafts)
http://craftsbycarer.etsy.com/
http://princessgracebow.etsy.com/ (hair bows and more)
http://bignoggincreations.blogspot.com
Monday, October 18, 2010
WE CANNOT THANK YOU ENOUGH!
To quote baby Clara's mom, "There are not enough words to thank you." We deposited just over $8,000 from yesterday's benefit for Clara. Along with the other donations received ahead of time, that brings our total to just shy of $10,000!!!! We've got a little fighter, some money and a whole lot of love behind her!!!! A few more pounds, a lot of positive energy, and Mayo Clinic, here we come!
Saturday, October 16, 2010
Sunday's the Big Day!
Clara's benefit will be tomorrow, Sunday, October 17th from 12-5 at the Cotton Exchange in Waterford. We have amazing auction items, door prizes, Model T rides, a fun money casino, and scrumptious baked goods. We hope to see you there!
By the way, our baby bear herself will be in attendance. Come see our motivation and maybe you'll be blessed with a Clara smile!
By the way, our baby bear herself will be in attendance. Come see our motivation and maybe you'll be blessed with a Clara smile!
Thursday, October 14, 2010
A huge thank you to our sponsors!
We'd like to thank the following businesses and individuals for their generous donations of time, talents, auction items, or funds for Sunday's benefit.
The Cotton Exchange
The Kinder Kloset
Reineman’s True Value
Baymont Inn
Pick N Save
Waterford Junction BP
Cedar Shack
JCI Greenfield
Burlington Rotary
Nancy Dziedzic
Donna Fisher
Patti Beck & Tim Draskovich
Pharmacy Station
Burger King
Roesing’s Furniture
The Union House
My Closet Castaways
YES MAM Creations
Starks Sport Shop
M&I Bank
Edgerton Pharmacy
Courthouse Creations
Well Rounded Maternity Center
Mother Moon Pads
GEM Cloth
Slice Custom Cakes
Music Therapy Services of Waukesha County
Rebecca Stujenske
Keitra Gellings
Emily Nicholson
Walgreens
American Family of Edgerton
Julie Campbell
R&B Karaoke
Lisa Desmond Photography
Fred and Darlene Loomis
If you have the chance, repay their kindness by frequenting their businesses!
See you all on Sunday!
The Cotton Exchange
The Kinder Kloset
Reineman’s True Value
Baymont Inn
Pick N Save
Waterford Junction BP
Cedar Shack
JCI Greenfield
Burlington Rotary
Nancy Dziedzic
Donna Fisher
Patti Beck & Tim Draskovich
Pharmacy Station
Burger King
Roesing’s Furniture
The Union House
My Closet Castaways
YES MAM Creations
Starks Sport Shop
M&I Bank
Edgerton Pharmacy
Courthouse Creations
Well Rounded Maternity Center
Mother Moon Pads
GEM Cloth
Slice Custom Cakes
Music Therapy Services of Waukesha County
Rebecca Stujenske
Keitra Gellings
Emily Nicholson
Walgreens
American Family of Edgerton
Julie Campbell
R&B Karaoke
Lisa Desmond Photography
Fred and Darlene Loomis
Christine Martin
The teachers and staff of Waterford Graded School District and WUHS
If you have the chance, repay their kindness by frequenting their businesses!
See you all on Sunday!
Sunday, October 10, 2010
1 week!!
One week till the Clara Bear Benefit!!
The benefit will be held at the Cotton Exchange in Waterford from 12-5pm. If you don't know how to get there, here are some directions, so NO excuses!!
We are having a vendor fair, model T rides, a silent auction, bake sale, casino tables, and some activities for the kiddos! There is something for everyone! Cost to get in is $20 for adults, $10 for kids 3-10, and kids 2 and under are free. This gets you unlimited spaghetti, salad, and breadsticks.
PLEASE SPREAD THE WORD!! Clara and family need all the support we can drum up!
See you there!!
The benefit will be held at the Cotton Exchange in Waterford from 12-5pm. If you don't know how to get there, here are some directions, so NO excuses!!
We are having a vendor fair, model T rides, a silent auction, bake sale, casino tables, and some activities for the kiddos! There is something for everyone! Cost to get in is $20 for adults, $10 for kids 3-10, and kids 2 and under are free. This gets you unlimited spaghetti, salad, and breadsticks.
PLEASE SPREAD THE WORD!! Clara and family need all the support we can drum up!
See you there!!
Monday, October 4, 2010
Updates...
Clara spent her 7 month birthday at home this weekend! Thanks to the CBF supporters, Mom and Dad were able to pick up some much needed supplies to help with the transition from ICU to home. Big brother Liam is happy to have "Baby Bear" back where she belongs. Never underestimate what your support does! All of the donations add up to make a huge difference in Clara's life!
The benefit for Oct 17th is coming along. Confirmed vendors include Partylite, Miche Bags, Ippity Stamps, L'Bri Skin Care, Carrie's Crafts, Demmer Art, Tastefully Simple, Discovery Toys and more! Auction items so far vary from local restaurant gift certificates to cordless drills to toys. Something for everyone! We hope to see you there!
The benefit for Oct 17th is coming along. Confirmed vendors include Partylite, Miche Bags, Ippity Stamps, L'Bri Skin Care, Carrie's Crafts, Demmer Art, Tastefully Simple, Discovery Toys and more! Auction items so far vary from local restaurant gift certificates to cordless drills to toys. Something for everyone! We hope to see you there!
Thursday, September 30, 2010
Thursday, September 16, 2010
Clara Bear Benefit is coming together!
We're getting things moving for the benefit on Oct 17th. We have several vendors lined up for the vendor fair but still need more. Contact us today if you're interested. Also, if you have secured any donations for the auction, please let us know asap. Email us at clarabearfund@yahoo.com.
An update on our Bear-- Clara has been in the hospital for about a week following a massive seizure during which she stopped breathing. She's doing better and back to her smiling self, but the battle wages on. Spread the word about the CBF benefit. Clara needs our support!
An update on our Bear-- Clara has been in the hospital for about a week following a massive seizure during which she stopped breathing. She's doing better and back to her smiling self, but the battle wages on. Spread the word about the CBF benefit. Clara needs our support!
Monday, August 30, 2010
Vendors Sought for CBF Benefit Oct 17th
Are you a home vendor (Partylite, Stampin Up, homemade crafts, etc) who would like a great audience, free publicity AND a worthy cause? Consider being a demonstrator at the Clara Bear benefit. You'll get table space, brand exclusivity and web/print exposure. All we ask is you donate 25% of your proceeds from the event back to CBF. Contact us at clarabearfund@yahoo.com for more info! (First come, first booked with regards to brand exclusivity)
Thursday, August 19, 2010
A Big THANK YOU!
Thanks to everyone who either supplied or helped collect breast milk. Clara has a fully stocked freezer with more on the way. Let's get her strong enough to attend her benefit on Oct 17th!
Benefit Date Set!!
Clara's benefit date is OFFICIALLY October 17th. The benefit will be held at the Cotton Exchange in Waterford.
The cost to get in will be $20 for adults, $10 for kids 3-10, and free for kids 2 and under. This will get you into the benefit and you get to eat unlimited pizza, spaghetti (meat and alfredo sauces), salad, and breadsticks!
There will be a silent auction, a 50/50 raffle, vendors from many companies (Pampered Chef, Wild Tree, Tastefully Simple, etc), Model T rides, and a bake sale!
Please come and support Clara and her family!!
The cost to get in will be $20 for adults, $10 for kids 3-10, and free for kids 2 and under. This will get you into the benefit and you get to eat unlimited pizza, spaghetti (meat and alfredo sauces), salad, and breadsticks!
There will be a silent auction, a 50/50 raffle, vendors from many companies (Pampered Chef, Wild Tree, Tastefully Simple, etc), Model T rides, and a bake sale!
Please come and support Clara and her family!!
Thursday, July 15, 2010
Official Clara Bear Fund Benefit in motion!
The Official benefit for the Clara Bear Fund is in motion! We're aiming for the first weekend in October. Thoughts for the event so far include a casino night, Model T rides, and a chili cookoff. Have other ideas? Email them or post them on the FB page.
For anyone who may be confused, the upcoming Two Families, One Cause event is not the official Clara Bear Fund benefit. Family and friends of the Werners graciously offered to split their proceeds with Clara. (So please-- show up and support their event as well. We hear there will be kids activites, pizza, a brass band and more!) But be sure to watch for the forthcoming details of our fall benefit!
For anyone who may be confused, the upcoming Two Families, One Cause event is not the official Clara Bear Fund benefit. Family and friends of the Werners graciously offered to split their proceeds with Clara. (So please-- show up and support their event as well. We hear there will be kids activites, pizza, a brass band and more!) But be sure to watch for the forthcoming details of our fall benefit!
Wednesday, June 30, 2010
We have a date!
The date for the benefit has been set, AUGUST 8th at Roma's in East Troy! So please mark your calendars. We will be posting more info as plans are made!
If you havent noticed, you can now donate to the Clara Bear Fund. Just click on the 'donate' button to the left. Or you can go to M&I bank in Waterford or Burlington and donate there!
If you havent noticed, you can now donate to the Clara Bear Fund. Just click on the 'donate' button to the left. Or you can go to M&I bank in Waterford or Burlington and donate there!
Friday, June 18, 2010
Update
Well, we have made progress in the last few weeks.
-we have the paperwork done to get non-profit status (there is still lots to decide on here, but at least the first step is done, and we can move forward)
-we have a bank account set up for Clara
AND we have a paypal account set up, so that you can donate directly to the bank account, without setting foot in the bank!! (see donate button on the left hand side of the blog)
As for Clara, she has gained 7 oz in a little over a week and a half. This puts her at 10lbs 11oz. Her liver transplant will probably be done at Northwestern (in Chicago). She needs to reach 17 pounds, so she is trending in the right direction.
-we have the paperwork done to get non-profit status (there is still lots to decide on here, but at least the first step is done, and we can move forward)
-we have a bank account set up for Clara
AND we have a paypal account set up, so that you can donate directly to the bank account, without setting foot in the bank!! (see donate button on the left hand side of the blog)
As for Clara, she has gained 7 oz in a little over a week and a half. This puts her at 10lbs 11oz. Her liver transplant will probably be done at Northwestern (in Chicago). She needs to reach 17 pounds, so she is trending in the right direction.
Saturday, May 29, 2010
Complete 180...
Well, it looks as though Clara will NOT be added to the transplant list at this moment in time. Now, before you get all sad and frustrated with life, the GREAT news is that the blood work on her liver came back, and her liver is looking awesome! (minus the bilirubin)
So prayers are being answered!! WOOHOO!! Keep on prayin for Clara and family
So prayers are being answered!! WOOHOO!! Keep on prayin for Clara and family
Friday, May 28, 2010
1 step forward, 2 steps back
Well, Clara lost the weight that she gained. :( This morning Ana had her in the ER for dehydration as well. So please pray for all of them!
In regards to a future transplant. If a living donor transplant is to be done, Clara's donor would need to fit the following mold:
Over 18
BMI in the ideal/normal range http://www.bmi-calculator.net/
B+ or O blood type
Do you fit that mold?
Clara would also need to be healthy enough for the transplant. And at this time, no one is sure if insurance will cover the cost for Clara or a donor.
In regards to a future transplant. If a living donor transplant is to be done, Clara's donor would need to fit the following mold:
Over 18
BMI in the ideal/normal range http://www.bmi-calculator.net/
B+ or O blood type
Do you fit that mold?
Clara would also need to be healthy enough for the transplant. And at this time, no one is sure if insurance will cover the cost for Clara or a donor.
Tuesday, May 25, 2010
Keepin' the faith!!
Clara's feeds have moved to every hour, which is paying off!! Miss Clara bear gained six ounces!! Transplant guidelines have a minimum weight of about 12 1/2 pounds, and Clara is currently at about 10 1/2 pounds. So two more pounds (32 ounces) to go!!
Keep up the prayers, good vibes, and positive thoughts, because they are helping!!
We are still working on our non-profit status, once we get that, plans for a benefit can move forward...
Keep up the prayers, good vibes, and positive thoughts, because they are helping!!
We are still working on our non-profit status, once we get that, plans for a benefit can move forward...
Thursday, May 20, 2010
Clara's Immediate Needs
I asked Ana today what some of their immediate needs are. She quickly responded that feeding Clara is one of the biggest strains at the moment. Clara needs to weigh about 12.5 pounds to be a transplant canidate, and as of right now, she is about 10 pounds. However, feeding her is quite expensive and her medications are not cheap either.
Right now she is on:
Enfamil Pregestimil Lipil formula (in the green can and is about $27 per can)
Medium Chain Triglyceride Oil (aka MCT oil, I believe Matt said they found these at a health food store)
ABDEKs (vitamin)
And multiple other medications that have to be made specifically for Clara
We thought the best way to go about this was gift cards for at Walgreen's since that is where they get most of Clara's stuff.
So if you can help out, PLEASE let us know. Feel free to email us at clarabearfund@yahoo.com!
Right now she is on:
Enfamil Pregestimil Lipil formula (in the green can and is about $27 per can)
Medium Chain Triglyceride Oil (aka MCT oil, I believe Matt said they found these at a health food store)
ABDEKs (vitamin)
And multiple other medications that have to be made specifically for Clara
We thought the best way to go about this was gift cards for at Walgreen's since that is where they get most of Clara's stuff.
So if you can help out, PLEASE let us know. Feel free to email us at clarabearfund@yahoo.com!
Sunday, May 16, 2010
Welcome to the Clara Bear Fund Page!
Hi!
Welcome to our page. We are in the process of setting up a benefit for Clara.
Right now we are working on getting a tax exempt staus, setting a date (and place) for her benefit, and then we will be begging for donations!
Stay tuned for updates on our efforts and an event date!
Welcome to our page. We are in the process of setting up a benefit for Clara.
Right now we are working on getting a tax exempt staus, setting a date (and place) for her benefit, and then we will be begging for donations!
Stay tuned for updates on our efforts and an event date!
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